Caregiving on the Hopi Reservation

Findings from the 2012 Hopi Survey of Cancer and Chronic Disease

Felina M. Cordova, Robin B. Harris, Nicolette I. Teufel-Shone, Peyton L. Nisson, Lori Joshweseoma, Sylvia R. Brown, Priscilla R Sanderson, Delores Ami, Kathylnn Saboda, Ann M. Mastergeorge, Lynn B. Gerald

Research output: Contribution to journalArticle

3 Citations (Scopus)

Abstract

A family caregiver provides unpaid assistance to a family member/friend with a chronic disease, illness or disability. The caregiving process can affect a caregiver’s quality of life by reducing time for themselves, for other family members and for work. The 2000 Behavioral Risk Factor Surveillance Survey estimates that 16 % of adult American Indians (AIs) are caregivers. A 2012 survey collected knowledge and personal experience data from a random sample of Hopi men and women (248 men and 252 women). Self-identified caregivers answered questions on time spent caregiving, caregiver difficulties and services requested. Approximately 20 % of the 500 Hopi participants self-identified as caregivers (N = 98), with 56 % female. Caregivers in contrast to non-caregivers had a lower percentage of ever having a mammogram (86, 89 %), a higher percentage of ever having had a Pap smear test (89.1, 85.6 %), a prostate specific antigen test (35, 30.6 %) and ever having had a colonoscopy (51.2, 44 %). Almost 21 % of caregivers reported difficulty with stress and 49 % reported it as their greatest caregiver difficulty. More males (28.6 %) identified financial burden as the greatest difficulty than females (p = 0.01). Training on patient care was the service that caregivers would like to receive most (18.2 %). The percentage of Hopi’s providing caregiving was similar to national averages, although among men, was somewhat higher than national data (44 vs. 34 %). Stress was identified as a difficulty, similar to national studies.

Original languageEnglish (US)
Pages (from-to)1-10
Number of pages10
JournalJournal of Community Health
DOIs
StateAccepted/In press - May 10 2016

Fingerprint

caregiving
Caregivers
caregiver
cancer
Chronic Disease
Disease
Neoplasms
Papanicolaou Test
family member
Surveys and Questionnaires
North American Indians
American Indian
Colonoscopy
Prostate-Specific Antigen
patient care
random sample
surveillance
Patient Care
quality of life
illness

Keywords

  • American Indian
  • Cancer
  • Cancer screening
  • Caregiver
  • Caregiving
  • Health disparities
  • Reservation

ASJC Scopus subject areas

  • Public Health, Environmental and Occupational Health
  • Health(social science)

Cite this

Cordova, F. M., B. Harris, R., Teufel-Shone, N. I., L. Nisson, P., Joshweseoma, L., R. Brown, S., ... B. Gerald, L. (Accepted/In press). Caregiving on the Hopi Reservation: Findings from the 2012 Hopi Survey of Cancer and Chronic Disease. Journal of Community Health, 1-10. https://doi.org/10.1007/s10900-016-0199-1

Caregiving on the Hopi Reservation : Findings from the 2012 Hopi Survey of Cancer and Chronic Disease. / Cordova, Felina M.; B. Harris, Robin; Teufel-Shone, Nicolette I.; L. Nisson, Peyton; Joshweseoma, Lori; R. Brown, Sylvia; Sanderson, Priscilla R; Ami, Delores; Saboda, Kathylnn; M. Mastergeorge, Ann; B. Gerald, Lynn.

In: Journal of Community Health, 10.05.2016, p. 1-10.

Research output: Contribution to journalArticle

Cordova, FM, B. Harris, R, Teufel-Shone, NI, L. Nisson, P, Joshweseoma, L, R. Brown, S, Sanderson, PR, Ami, D, Saboda, K, M. Mastergeorge, A & B. Gerald, L 2016, 'Caregiving on the Hopi Reservation: Findings from the 2012 Hopi Survey of Cancer and Chronic Disease', Journal of Community Health, pp. 1-10. https://doi.org/10.1007/s10900-016-0199-1
Cordova, Felina M. ; B. Harris, Robin ; Teufel-Shone, Nicolette I. ; L. Nisson, Peyton ; Joshweseoma, Lori ; R. Brown, Sylvia ; Sanderson, Priscilla R ; Ami, Delores ; Saboda, Kathylnn ; M. Mastergeorge, Ann ; B. Gerald, Lynn. / Caregiving on the Hopi Reservation : Findings from the 2012 Hopi Survey of Cancer and Chronic Disease. In: Journal of Community Health. 2016 ; pp. 1-10.
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abstract = "A family caregiver provides unpaid assistance to a family member/friend with a chronic disease, illness or disability. The caregiving process can affect a caregiver’s quality of life by reducing time for themselves, for other family members and for work. The 2000 Behavioral Risk Factor Surveillance Survey estimates that 16 {\%} of adult American Indians (AIs) are caregivers. A 2012 survey collected knowledge and personal experience data from a random sample of Hopi men and women (248 men and 252 women). Self-identified caregivers answered questions on time spent caregiving, caregiver difficulties and services requested. Approximately 20 {\%} of the 500 Hopi participants self-identified as caregivers (N = 98), with 56 {\%} female. Caregivers in contrast to non-caregivers had a lower percentage of ever having a mammogram (86, 89 {\%}), a higher percentage of ever having had a Pap smear test (89.1, 85.6 {\%}), a prostate specific antigen test (35, 30.6 {\%}) and ever having had a colonoscopy (51.2, 44 {\%}). Almost 21 {\%} of caregivers reported difficulty with stress and 49 {\%} reported it as their greatest caregiver difficulty. More males (28.6 {\%}) identified financial burden as the greatest difficulty than females (p = 0.01). Training on patient care was the service that caregivers would like to receive most (18.2 {\%}). The percentage of Hopi’s providing caregiving was similar to national averages, although among men, was somewhat higher than national data (44 vs. 34 {\%}). Stress was identified as a difficulty, similar to national studies.",
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